Alright, here’s what I’m going to talk about for the first regular blog post:
-Perks of Autism?!
–MYNAMEISJOEYHOFFMAN: the most interesting page that I’ve ever seen.
-What’s so bad about glutens?
Perks of Autism?!
First thing’s first, and it’s something that may rub some people the wrong way but I feel that it must be said. Every now and again, I see something in the autism community talking about the perks that come along with autism. And I’m not talking about how loving or great kids with autism are, but what you can get with a kid with autism. As a person with autism, it REALLY bothers me. Honestly, it makes me sick to my stomach whenever I see something like that. And I feel that many people who are outsiders to the autism community may see us as whiners and selfish people instead of people who love and care for someone with autism.
Now let me get something straight here before I continue: I do not define a perk as something your child needs in order to function or survive in the world. I’m all for someone with autism getting Social Security Disability if they’re never going to be able to find a job. But how about if I got SSI? I can certainly get it since I have autism, but I have a job and will be able to function without it. So, to take it from another person who really needs it would be selfish on my behalf. Also, if a child has difficulty walking in parking lots or streets, I have no problem with someone who parks in a handicapped spot if they need to. But how about if your child, whether they have autism or not, can walk just fine in the parking lot? I find it selfish that someone would use that as an excuse to park in a handicapped spot. Why? Well, if a 90-year-old woman who has a broken hip and bad back can’t park in the handicapped spot because someone didn’t feel like walking a distance to the store, wouldn’t you call that selfish?
There’s a difference between a service and a perk. Before you utilize anything, ask yourself these questions:
-Does my child really need it?
-Does someone else desperately need this service?
For example, I still have an IEP at my school and still utilize those services (although I think that should be extended to ALL students regardless of an autism diagnosis or not). But I do not collect SSI or park in handicapped spots. Even though I could utilize these services, I know that I definitely don’t need them and that other people desperately need them. I have a job that is able to pay for my expenses and my family pitches in from time to time, so why do I need to rob other people of money that they desperately need to pay for basic expenses? I’ll be able to survive. Also, I freaking cross streets in University City in Philadelphia. In fact, today I ventured into Center City (Downtown Philadelphia) which is 10 times worse than University City. If I can do that, then I can walk a good distance across a parking lot and let someone who has a bad back and broken bones use the handicapped spot.
Finally, I feel that this sort of shit gives our community a bad name. People will start thinking that since we brag about all the cool shit we get, that we’re selfish douches. This gives ammunition to people like Newt Gingrich who will have no problem eliminating things like Social Security and other things that our kids actually NEED to make it in the world. Is this how we want our community to be defined?! Do we want to be known as the selfish people who can do no wrong and will bitch about everything and anything?! Who’s gonna support a community like that?
Let me just say this before I move onto my next topic: I am not trying to be offensive. This is something that I see on blogs and pages that I really like and it just bothers me. If I’m taking this out of context or taking it the wrong way (which happens with people with Asperger’s or really anyone), please let me know about it and we can have a discussion about it. But as a person with autism, this is how I feel about stuff like this.
MYNAMEISJOEYHOFFMAN: the Most Interesting Page that I’ve Ever Seen
I recently came across a page that surprised me. Upon first glance, I could gather that the page was being run by a young child who had asperger’s syndrome. Based on how well done it was, I figured that the kid might have been 9 or 10 years old. Then I came across a post that said that he was in kindergarten. That makes him one year older than my 4-year-old nephew (correct me if I’m wrong).
That amazes me. At that age, I barely knew how to operate the internet. In fact, my mom wouldn’t let me get a MySpace page (before the days of Facebook) until I was 15-years-old. He also said that he has the reading ability of an average high school student. But what strikes me the most about this page is how well done it is and how clearly he conveys his thoughts. It looks similar to other Facebook pages that are about autism. It totally fooled me that this kid was that young and running a page such as this.
Obviously, I suggest that you go visit his page. You can do so through the link in the title above or at the beginning of the blog.
What’s So Bad About Glutens?
I never really understood what the problem with glutens is in the autism community. I never had that problem or never thought that it was a problem. I ask anyone who has any insight on this to please share a story about glutens regarding you or your child. Maybe it has been a problem with me and I’ve never noticed it.
Sorry about having the blog up a day late. Again, I understand that I’ve brought up some controversial stuff here, but understand that I’m not trying to be offensive. There are some things that just bother me. If I’m taking things out of context or the wrong way, let me know about it. Aspies can do that at times. Anyway, let me know about what you thought about this blog and possible topics for future blogs.